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Additional Resources
Hospice spiritual caregivers experience blessing and bane of being among the last of the "generalists" in their field. The spirituality of patients, family, and staff impacts every dimension of hospice and bereavement care. Therefore, the spiritual caregiver is given the opportunity to be widely read. In addition, the spiritual caregiver may choose to pursue a specific focus in greater depth, depending upon the patient population served, the needs of the agency, and the interest and spiritual tradition of the caregiver.
Following below is a brief hospice spiritual caregiver’s bibliography, organized by areas of interest/concentration.
Bereavement
Doka, Kenneth J., ed., Living with Grief When Illness is Prolonged, Taylor & Francis, Washington, DC, 1997.
Doka, Kenneth J., and Joyce D. Davidson, ed., Living with Grief: Who We Are, How We Grieve, Brunner/Mazel, Philadelphia, 1998.
Westberg, Granger E., Good Grief, Fortress Press, Minneapolis, 1962.
Children
Buscaglia, Leo, The Fall of Freddie the Leaf, Slack Inc., Thorofare, NJ, 1982.
Doka, Kenneth J., ed., Children Mourning, Mourning Children, Taylor & Francis, Washington, DC, 1995.
Hazen, Barbara Shook, Why Did Grandpa Die?, Western Publishing Company, Inc., Racine, WS, 1985.
Huntley, Theresa, Helping Children Grieve When Someone They Love Dies, Augsburg, Minneapolis, 1991.
Kubler-Ross, Elisabeth, On Children and Death, Macmillan Publishing Company, New York, 1983.
Death and Dying
Byock, Ira, Dying Well: The Prospect for Growth at the End of Life, Riverhead Books, New York, 1997.
Joesten, Leroy, "The Voice of the Dying and the Bereaved: A Bridge Between Loss and Growth," Hospital Ministry: The Role of the Chaplain Today, Lawrence E. Holst, ed., The Crossroad Publishing Company, New York, 1987.
Irish, Donald P., Kathleen F. Lundquist and Vivian Jenkins Nelson, Ethnic Variations in Dying, Death, and Grief: Diversity in Universality, Taylor & Francis, Washington, DC. 1983.
Meditation/Prayer/Ritual
Bernardin, Joseph Cardinal, The Gift of Peace, Loyola Press, Chicago, 1997.
Duffy, Carol Ann, ed., Stopping for Death, Poems of Death and Loss, Henry Holt and Company, New York, 1996.
Loder, Ted, Wrestling the Light: Ache and Awe in the Human Divine Struggle, Lura Media, San Diego, 1991.
Nouwen, Henri J. M., In Memoriam, Ave Maria Press, Notre Dame, IN, 1980.
Our Greatest Gift: A Meditation on Dying and Caring, Harper Collins, New York, 1994.
Richmond, Kent D., A Time to Die: A Handbook for Funeral Sermons, Abingdon Press, Nashville, TN, 1990.
Sloyan, Virginia, ed., Death: A Sourcebook about Cristian Death, Liturgy Training Publications, Chicago, 1990.
Snow, John, Mortal Fear: Meditations on Death and AIDS, Cowley Publications, Cambridge, MA, 1987.
Patient/Family Resources
Ash, Beatrice M. A., A Time to Live, A Time to Die, Augsburg, Minneapolis, 1993.
Miller, James, E., Autumn Wisdom: Finding Meaning in Life’s Later Years, Augsburg, Minneapolis, 1995.
How Can I Help? What Will Help Me?, Willowgreen Publishing, Fort Wayne, IN, 1994.
How Will I Get Through the Holidays, Willowgreen Publishing, Fort Wayne, IN, 1996.
Winter Grief, Summer Grace: Returning to Life after a Loved One Dies, Augsburg, Minneapolis, 1995.
Thompson, Mervin E., What You Need to Know When Death Touches Your Life: Practical Help in Preparing for Death, Prince of Peace Publishing, Inc., Burnsville, MN, 1986.
Related Topics
Kimble, Melvin A., Susan H. McFadden, James W. Ellor, and James J. Seeber, ed., Aging, Spirituality, and Religion, Fortress Press, Minneapolis, 1995.
Munley, Anne, The Hospice Alternative: A New Context for Death and Dying, Basic Books, Inc., New York, 1983.
Numbers, Ronald L., and Darrell W. Amundsen, ed., Caring and Curing: Health and Medicine in the Western Religious Tradition, MacMillan Publishing Company, New York, 1986.
Nuland, Sherwin B., How We Die: Reflections on Life’s Final Chapter, Knopf, New York, 1994.
Palmer, Greg, Death: The Trip of a Lifetime, Harper Collins, New York, 1993.
Satterly, Lamont, Tattooed in the Cradle: The Healing Journey from Family to Spiritual Wholeness, The SEARCH Foundation, Maple Glen, PA, 1993.
Living Will and Power of Attorney for Health Care forms:
Office of the Attorney General, Senior Citizens Advocacy Bureau
100 W. Randolph, Chicago, IL 60601
800-243-5377
Illinois State Medical Society
20 N. Michigan Ave., Suite 700, Chicago, IL 60602
312-782-6084
Partnership for Caring, Inc. (download state-specific advance directive forms)
www.partnershipforcaring.org
Five Wishes document:
Aging with Dignity
888-594-7437 or www.agingwithdignity.org
Partnership of Hope at Rainbow Hospice
444 N. Northwest Highway, #145, Park Ridge, IL 60068
847-692-8884 or www.rainbowhospice.org
Guides and Handbooks:
American Bar Association, American Medical Association and AARP
Shape Your Health Care Future with Health Care Advance Directives
www.abanet.org/elderly
Ethical Wills: Preserving Your Legacy of Values
www.ethicalwill.com
Georgia Health Decisions - Critical Conditions Project
877-633-2433 or www.critical-conditions.org
Gundersen Lutheran Hospital - Making Choices Planning Guide
800-362-9567 ext. 5279 or www.gundluth.org/eolprograms
Hard Choices for Loving People: CPR, Artificial Feeding, Comfort Measures Only and the Elderly Patient, by Hank Dunn www.hardchoices.com
Healthcare and Elder Law Programs Corporation (H.E.L.P.)
310-533-1996 or www.help4srs.org
Midwest Bioethics Center - Caring Conversations Workbook
816-221-1100 or www.midbio.org
Montefiore Medical Center - Making Health Care Decisions for Others: A Guide to Being a Health Care Proxy or Surrogate www.montefiore.org/prof/clinical/desm/progserv/bioethics/proxy/index.html
National Hospice & Palliative Care Organization - Communicating Your End-of-Life Wishes
703-516-4928 or www.nhpco.org
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